Children With Cancer: Using Technology to Support a Family in Treatment

Families facing the devastating diagnosis of pediatric cancer are quickly catapulted into the world of pediatric oncology, and for their friends and extended families, it’s only natural to want to help. But beyond delivering the occasional meal, what else can be done? The answer; a lot. Especially with modern technology, and social support portals like Give InKind.

Why Support Matters

Fighting cancer takes time and money (or at least insurance, and often still, additional money). Taking care of a child with cancer is a full-time job. Unfortunately, keeping life-saving medical insurance also requires a full-time-job. So what’s a working family to do? Many families go from two paychecks to one, in order to have one full-time caregiving parent. But this leaves financial, emotional, and time and energy gaps.

Who takes the family’s other kids to school? Who cooks dinner, prepares lunches, cleans the house, walks the dog, picks up the mail, and manages the household when one parent is caring for their sick kid and the other is working full time? This is where the community comes in.

How Can You Help?

Set up a Give InKind campaign for the family and include items in their wish list they’ll actually use. You can even let the family request specific services at specific times on their calendar, and coordinate community care when it matters most (there’s only so much lasagna, thoughts, and prayers one can use). Here are some things you can get and do for these families that will help make a difference.

  1. Hospital Stay Care Packages: For parents staying with their sick kid in the hospital, bring them the comforts of home. Their favorite mug. Fuzzy comfortable slippers with grips on the bottom. Extra throw blankets to stay warm. A favorite toy for their sick child. Lip balm. Lotion. Detergent packets so they can wash their clothes in the sink or the laundry at the hospital. Tea. Favorite snacks, and more.
  2. Visit and Take The Parent for a Walk: Especially for parents with a critically ill child, visit and offer to take the parent for a walk outside, even if only for a few minutes. Listen if they want to talk, or be comfortable walking in silence. 
  3. Indulge The Caregiving Parent in a Spa Day: It’s hard to think about your own needs or even things you want when you’re fighting for your sick kid. Buy the parent a gift card to the day spa, or their favorite salon, or other luxury experience. If you live near them, take them with you for an afternoon. 24/7 caregivers need a break.
  4. Take The Siblings Out for the Day: If the sick child has siblings, they’re probably ready for a day out. Take them to see a movie, or the park, or an amusement park. Their parents have been preoccupied for a while and they need some love and attention too. Find an activity they want to do and go do it.
  5. Bring the Art: Art can be healing both mentally and physically. Ask whether there are crafts that can be purchased that help ease the effects of their specific type of cancer and treatment. For example, radiation can lead to peripheral neuropathy (a dulling of nerves in the extremities.) Certain crafts that promote fine motor skills can be restorative. Ask whether an occupational therapist can make specific suggestions. Find a DIY kit that may fit the bill.
  6. Shop for the Family, or Pay For The Food: Get specific shopping list items for the family and go shopping for them. If you’re remote, have these foods delivered, or at least get gift cards to local markets. Caring for an ill child is expensive. Feeding an ill child is difficult and shopping takes up time parents need to be with their kid.
  7. Walk the Dog: If the family has pets, offer to visit regularly to take the dog for a walk, or clean the cat box, or the birdcage.
  8. Water Plants: Gardening and yard work are the least of the family’s worries right now. Offer to water the plants weekly, or find a service who can.

Above all, keep checking in. Bills, stress and fear linger long after the cancer resolution. Go ahead and keep asking: what can I do to be helpful?

To learn more about ways to support families through their pediatric cancer journeys, you can visit our Pediatric Cancer Family Support Portal here.

About Give InKind

Give InKind is an intelligent social support platform that helps friends and family coordinate tangible, financial, and emotional support for those who need it. Everyone goes through major life events, and everyone needs a little help sometimes. From the birth of a baby, to loss of a family member, to medical crisis and disasters, people need more than just money and lasagna. Every individual or family in need is different, and so are the ways we like to give support. Give InKind helps people coordinate help with things like dinner dropoffs, walking the dog, picking kids up from school, buying groceries, and watering plants. Give InKind lets givers provide or send specific services or assistance that helps those they care about focus on what matters. To learn more visit: https://www.giveinkind.com.

 

 

Holiday Giving: Remembering Parents Whose Children Are Hospitalized

“When your child is admitted to the hospital, get comfortable.” This from Jenine Repice, whose family faced a serious pediatric medical crisis.

When a young child is admitted for an inpatient hospital stay, it is important to note that parents who intend to stay in the room with the child are typically given very little. This is understandable – the hospital staff are charged with patient care. In delivering these primary services, other family needs are necessarily secondary.

This reality does, however, offer a terrific opportunity for family and friends to rally around the parents by providing necessary comfort items in the form of a community care package. When nothing is familiar and everything feels uncertain, seemingly little gestures of support can bridge the chasm more than we know.

What To Express in Your Gift: I am thinking of you at every moment. I just really do want you to know that.

Holiday Giving: For Families in the NICU

Our holiday gift guides are created to suggest the most helpful things to give this holiday season. This gift guide considers the best gifts for families who will be spending the Holidays in the NICU. Each of these items has been suggested by a NICU nurse or by a NICU mom. Each is designed to offer concrete and meaningful support for families under stress. 

For families with a baby in the NICU, the holidays offer numerous challenges especially during COVID. While their eyes (and their energies) remain trained on a NICU incubator, the world continues to spin. If a family in question has older child/ren, the balancing act between a baby and older sibling(s) must be artfully negotiated. For these reasons, the gift of acknowledging an impossible/difficult situation is, in and of itself, an act of love. Still, practical items help a great deal too.

What To Express When Giving This Gift: I know that you all are totally taken up with the the baby/babies right now. I just wanted to say that no one has forgotten about you – we really want to help. I think about all the things I do every day and I know you have a hard time leaving the hospital. I would love to help you coordinate stuff for as long as you need – this gift is only a gesture of things to come. And a way to say that you are truly an incredible person and parent.  Can we talk? What works best for you?

Holiday Giving: Remembrances for Bereaved Spouses & Partners

Our holiday gift guides are created to suggest the most helpful things to give this holiday season. This guide suggests ideas to support the bereaved. (Bear in mind that grief knows no timeframe – a loss may have occurred calendar years ago, but the bereaved would still welcome acknowledgment).

All death is magnified during the Holidays when that happiness-on-overdrive thrumming quality reverberates. While our ability to offer tangible help is limited, the power of our reach, love, and friendship does matter. Here are a few ways to reach out and say that you too join them in remembrance of loss.

What To Express In Giving This Gift: I miss [name of deceased] too. You are not alone. I can’t imagine what you are feeling right now, but I wanted to let you know that I want to remember [name of deceased] and I am here to talk about anything should you find that useful. I can also do practical things – watch kids, carpool, go for a hike – anything. I’ll check in with you to see how I can be most useful. 

Holiday Giving: Things Your Aging Loved Ones Really Need

Our holiday gift guides are created to suggest the most helpful things to give this  holiday season. This gift guide considers the best gifts for our aging loved ones. Each of these items is suggested by medical personnel who work with geriatric populations. Each of these items can serve to help in concrete ways – while also opening a larger discussion between family and friends about how to best support a loved one in the longer term. Win/win. 

As those we love age, they face many challenges – some of which they are reticent to raise with younger generations. These elders recognize that their children and grandchildren are taken up with their own young children and families. As you consider aging loved ones in your life, take into account the things they need – but may not be getting. Remember that opening initially difficult conversations has net benefit in the long term. It is an act of love.

Ideas for What To Express When Giving This Gift:

I was thinking about how much you bring to our lives. I wanted to be sure that you had everything you needed. I am giving you this practical gift because I’d love to continue to learn about challenges you face – and help to coordinate my cousins and siblings to assist as well. You have done so much for us. Please do us the honor of permitting us to return the favor. Maybe we can sit down in January to talk it over? 

This is How To Help Friends & Family of the Bereaved During the Holidays

For the bereaved, impending holidays are often fraught. The beauty of the season (strung lights and candles) may strike a discordant note when one is grieving. The experience of, and emphasis on family as part of a holiday tradition and seasonal lore rests somewhere between poignant and crushing. My son was stillborn in December and I associate his death quite literally with chestnuts roasting on an open fire in carts in New York City, and horse-drawn livery cabs.

In my experience of working in bereavement since then, loving and well-intended people who want to reach out sometimes don’t. I am here to tell you that it is right and good to follow through on your impulse to reach out. 

I am also here to remind you that there is no timeline for grief. All experiences will be absolutely unique. There is no half-life of grief – and so if you catch yourself wondering whether to acknowledge loss consider these most commonly asked questions:

Q: I want to say something to my friend/brother/aunt – I know [they] were really devastated by [their] loss. But they seem like they are doing so well now. I don’t want to cause pain.

A: This is a lovely question to have. It reflects such consideration – you are remembering and acknowledging the pain of loss. This is such an act of love. The answer to this question is not straightforward. It depends a lot on the individual, and on your relationship to the individual. You know the person best and each situation is different. How you reach out should be considered along these parameters. In general though, it is always okay to say something to someone you know has suffered loss. In others words, you are not going to “remind” them of loss. They have not forgotten. You can send a card, or a memorial gift – to indicate that their loved one is gone but not forgotten.

Q: I’ll be honest. I really don’t know what to say. What should I say?

A: This is a tough one. While it is true that you won’t remind a bereaved person of their loss, it is also true that they may or may not want to talk about it. It is truest of all though, that it is still nice to acknowledge loss and to open a door through which they may or may not walk. There were people who tried to talk to me – I was not always able to have a long talk with them. It had more to do with where I was in my head than it did with them. But I truly appreciated their asking. If you are at a family dinner, take the bereaved one aside privately and ask whether it would be okay to drink a toast to the memory of the person who died. Send them a flowering plant as a reminder of the deep roots of life, love, and family (including friendships.)

Q: What can I do? I feel kind of powerless.

A: Above all else, checking in is doing something. Do not underestimate this. A quick call or an email is priceless. Invite them out for coffee, tea, or a drink. If they are far away, have a coffee/tea Skype date. If the bereaved has small children, don’t forget them as the holidays approach. Last minute errands are harder for solo parents. Anticipate this and send them extra stuff everyone forgets (triple A batteries, tiny screwdrivers, scotch tape.)

Keep showing up. Just keep showing up. It means more than you know.